Oxford Virtual Patient Engagement Day, March 2021
- Below are the links you will need to access the first Oxford Virtual Patient Engagement Day:
Information sessions from the NHS Specialist Services for Rare Mitochondrial Diseases Oxford
From this Link you can access all 10 information sessions
The Lily Foundation - A talk by Liz Curtis
The Charities CEO explains what the charity does and how they support people effected by mitochondrial disease.
- Question and Answer Session
The Oxford Mitochondrial Team also hosted a follow-up live Question & Answer session on 30/4/2021.
You can read the Questions submitted and the answers here
London Patient Engagement Day, October 2019:
Introduction to mitochondrial disease, research & clinical trials - Dr Rob Pitceathly
Fatigue management and exercise for people with mitochondrial disease - Sarah Holmes
Oxford Patient Information Evening, October 2018:
Tests in patients with mitochondrial disease - Dr Nishan Guha
Balance and physiotherapy: What exercises should I do? - Kate Browne
Planning future care - Dr Victoria Nesbitt
Planning future care (additional info) - Dr Victoria Nesbitt
Nutrition and bowel hygiene in mitochondrial disease - Catherine Feeney
Reproductive options in mitochondrial disease - Jo Lowndes
UCL Patient Information Day, October 2018:
Ubiquinone and mitochondrial disease - Iain Hargreaves
Oxford Patient Evening, April 2017:
Mitochondrial disease in adults: how do we manage stroke-like episodes? - Dr Robert Pitceathly
Research update: reproductive options & new drug trial - Prof Jo Poulton
Genetics, genomics, and the 100,000 Genomes Project - Jude Craft, Jen Whitfield
Mitochondrial disease in children: practical advice and drug studies - Dr Victoria Nesbitt