Terms of Use

The Rare Mitochondrial Disorders Service is unable to provide medical advice to individuals unless there has been a formal referral from their doctor. The content of this website is intended for information purposes only and is not meant to serve as a substitute for professional medical advice, diagnosis or treatment. 

The Rare Mitochondrial Disorders Service is not responsible for the content or reliability of linked websites and does not necessarily endorse the views expressed in them.

Privacy (updated 01.01.2021)

The Rare Mitochondrial Disorders service is committed to protecting your privacy. We will not collect or store any personal information about site users. We may collect non-personal data about users of the website (pages visited, network addresses, traffic patterns etc.). This is used only to evaluate the performance of the website and and is not connected with individuals.

In order to use certain areas of our website you may need to have cookies enabled in your web browser. By visiting our website with cookies enabled, you are consenting to The Rare Mitochondrial Disorders Service placing a cookie in your web browser.

For data protection purposes, the Rare Mitochondrial Disorders service website is under the control of The Lily Foundation which is a company limited by guarantee, registered in England and Wales under company number 6400879 and registered as a charity with the Charity Commission for England and Wales under number: 1122071.